Our “Kindness Is Everything” Campaign
You can learn about Moebius Syndrome and help spread awareness in the following ways:
- READ about Moebius Syndrome: https://moebiussyndrome.org/
- JOIN us annually on Moebius Syndrome Awareness Day (January 24th) and pledge to wear purple, partner in fundraising events such as the "Kindness is Everything" campaign with 100% of all profits donated to the Moebius Syndrome Foundation, and spread awareness online using the hashtag #TeamAddie, #SmileWithYourHeart #SmileForAddie, #KindnessIsEverything, #MSAD2022, #MoebiusSyndromeAwareness, #MoebiusAwareness, #ChooseKind, #LoveEverything2022
- Purchase Everything pickles from our online store and 5% of all sales are donated to the Kindness is Everything campaign.
- Purchase merchandise from our Kindness is Everything Shop and 100% of profits will be donated to the Moebius Syndrome Foundation.
- LEARN Addie's story, as told by her mom, below:
Addison (Addie) is a fun-loving seven-year-old. She was born on December 4, 2014, in Long Island, New York. She was born with Moebius Syndrome. Moebius Syndrome is a rare neurological disorder that causes facial paralysis. Many people affected by this disorder have a difficult time with speech, feeding, making facial expressions, and smiling. For Addie, her ability to breathe on her own was compromised as an infant so she also has a tracheostomy and ventilator (at night) to help her breathe and thrive.
However, these characteristics of her syndrome do not define her. Addie is an energetic, kind, wicked smart, funny little girl. She is a big sister who teaches, nurtures and helps her younger siblings. She loves to dance, read, and loves ANYTHING Disney! She has touched more lives in seven years than most adults will in their entire lifetime. Her courage, perseverance and drive has shown us what it truly is like to appreciate everything.
The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius Syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions. The Foundation welcomes new families who have just been diagnosed, brings families together every two years at their educational conferences and offers scholarships to higher education for people with Moebius Syndrome.
You can see Addie's story on YouTube at:
Smile With Your Heart